Lewy body disease: what you need to know
Are you familiar with Lewy body disease? Also known as Lewy body dementia, this is one of the most common neurodegenerative diseases, second only to Alzheimer's disease. Less well-known than Alzheimer's disease, Lewy body disease (LBD) is a neurocognitive disorder affecting the brain.
Its symptoms are numerous. They affect the cognitive sphere as much as movement, and can even influence mood and behavior. Let's find out more about Lewy body disease and how it can affect the daily lives of elderly sufferers and their families.
What is Lewy body disease?
Like Alzheimer's disease or Parkinson's, Lewy body dementia is considered a neurodegenerative disease. In other words, it is a condition affecting various parts of the brain, leading to both cognitive and physical problems.
You may be wondering: what exactly is a Lewy body?
Without going into the theory in depth, these are neuronal inclusions formed mainly by the accumulation of a protein, alpha-synuclein, in brain cells. Abnormal deposition of this protein leads to the formation of what are known as Lewy bodies (in honour of the researcher behind the discovery). These accumulations then interfere with the information transmitted between the various neuronal cells. The result is the appearance of a variety of symptoms. As well as being present in Lewy body dementia, the same deposits can also be found in people suffering from Parkinson's disease.
Most affected population
To date, little is known about the risk factors leading to the onset of Lewy body disease. However, scientists do point to certain facts:
- the existence of a link between this disease andAlzheimer's as well as Parkinson's;
- men seem to be more often affected by this disease than women;
- people aged 50 and over are more at risk;
- a certain genetic link could predispose to the disease.
What are the symptoms of Lewy body dementia?
Although Lewy body dementia(LBD) shares many similarities with other neurodegenerative diseases such as Alzheimer's or Parkinson's, certain symptoms often stand out in older people suffering from LBD.
These include:
- loss of functional autonomy;
- frequent visual hallucinations;
- Parkinson's -like motor disorders;
- and the development of various cognitive disorders are not always constant.
The first symptoms of MCI: the onset of cognitive impairment
Among the very first symptoms that can be identified are various cognitive disorders. Impaired memory, attention and concentration, difficulty expressing oneself and disorientation are just some of the signs present in people with Lewy body disease.
Unlike Alzheimer's disease, memory problems may not appear until later in the course of Lewy body dementia.
However, this neurocognitive disorder often leads to symptoms that impair concentration and attention. It is possible to observe that these signs are not constant from one day to the next. These rather unpredictable fluctuations tend to affect the person's daily life, as well as that of their loved ones.
Difficulties in situating oneself in space and in one's environment are also characteristic symptoms of this disease. These visual perception problems can have an impact on the ability to perform certain tasks and on reasoning.
Development of motor disorders
The motor symptoms that develop in patients with Lewy body dementia are very similar to those found in Parkinson's disease.
A few main motor symptoms may then set in over time:

Tremors (visible both at rest and during movement)

Muscle stiffness

Slowing Down in the Various Movements
We're talking about what's known as parkinsonism or parkinsonian syndrome.
Even if symptoms are initially mild for most people, they are likely to progress as the disease progresses. In such cases, certain limitations on the person's daily activities may be observed:
- Difficulty moving around and slow gait;
- balance problems and risk of falls;
- altered posture (tendency to bend forward) ;
- rigidity even affecting facial expressions;
- difficulty rising from a seated position ;
- as well as tremors that can complicate dexterity tasks.
Would you like to learn more?
We suggest you take a look at our article on Parkinson's disease and ways to help older adults living with it.
Behavioral changes and psychological disorders
Unfortunately, a diagnosis of Lewy body dementia is often accompanied by the onset of behavioral and mood issues. For some people, these symptoms are noticeable from the very beginning of the disease. For others, they don’t appear until later.
These behavioral changes and other psychological disorders can manifest themselves in different ways.
- Visual hallucinations that can be intense and tend to recur frequently. Unfortunately, this symptom tends to appear early on and affects the majority of people with Lewy body dementia;
- The development of symptoms of depression and anxiety;
- The psychotic symptoms associated with this neurodegenerative disease can even lead to delusions and certain episodes of paranoia.
How is Lewy body disease diagnosed?
Are you concerned that you may be suffering from Lewy body disease? Have you noticed that an elderly loved one is showing symptoms compatible with this cognitive disorder? Then it's important to speak to your GP. Of course, the diagnosis of such a disease can only be made by a doctor, or even more specifically by a specialist such as a neurologist. Other professionals, such as psychiatrists and neuropsychologists, can also play an important role in the care of MCL sufferers.
Medical diagnosis is based primarily on symptoms and other clinical observations. Complementary medical examinations and certain medical images (MRI or CT scan, for example) may, however, guide the specialist.
What treatments are available for this neurodegenerative disease?
Although there is no cure for Lewy body dementia, there are solutions to help control some of the effects of this neurodegenerative disease.
- Taking the medication used to treat Alzheimer's disease helps reduce certain cognitive symptoms.
- The use of medications also prescribed for Parkinson's patients can help control motor symptoms such as tremors or stiffness.
- In some cases, antipsychotics may be prescribed to treat delusions and hallucinations, for example. They should be used with caution, however, as some drugs can amplify symptoms.
Of course, all these treatments require a thorough medical assessment and can only be prescribed by the attending physician or specialist. So take the time to check with your elderly loved one's health care professional, who will be able to tell you what is most appropriate to help his or her condition.
How can I help an elderly person with Lewy body disease?
In addition to treatments arising directly from the medical field, assistive care plays an equally important role in helping people with Lewy body disease to cope with their daily lives.
Home care adapted to the specific needs of seniors
A senior in your family suffers from Lewy body dementia, and you're wondering what you can do to help. Home care can be a tailor-made solution to help him in his daily life.
Depending on the severity of the symptoms and the stage of this cognitive disorder, some older adults may be able to continue living at home despite the disease. However, these individuals will need assistance with daily activities.
That is why there are various home care services.
Find a retirement home specializing in cognitive disorders
In some cases, the best solution for the well-being of the person suffering from Lewy body disease is to find a specialized place that can offer the necessary environment and care directly on site. In Quebec, some retirement homes are specially adapted for seniors suffering from various cognitive disorders.
If the progression of Lewy body dementia means that your elderly loved one is gradually losing his or her independence, then it may be that the best thing for this person is to find a new living environment that will be better adapted to his or her needs.
Moving to a seniors' residence is an important step, and one that can be difficult for some. Our Visavie Senior Living advisors are there to help you make the transition as smooth as possible , thanks to their personalized support.
In short, coming to terms with a diagnosis of Lewy body dementia is not easy—neither for the person living with the condition nor for their loved ones and immediate family. The onset of symptoms such as hallucinations, the development of motor difficulties, and behavioral changes can hinder the person’s ability to live independently in their daily life. However, we are convinced that good support will help in coping with this neurodegenerative disorder.
At Visavie, our mission is to support seniors and their families with respect and dignity.

For personalized home care or to take advantage of free assistance in finding a senior living facility that meets the individual’s needs, please contact us at any time. Our team is available 7 days a week to help you.
Disclaimer
The content of this article is for informational purposes only and is not a substitute for professional evaluation. If you have any questions or concerns regarding your health or that of a loved one, we recommend consulting a doctor or a qualified healthcare professional.
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Questions and Answers (Q&A)
Everything you need to make informed decisions , all in one place.
What is Lewy body disease?
It is a neurodegenerative disease caused by the accumulation of an abnormal protein in the brain.
It disrupts communication between nerve cells, leading to cognitive, physical, and behavioral impairments. It is the second most common form of dementia after Alzheimer's.
What is the difference between Alzheimer's disease and Lewy body dementia?
Unlike Alzheimer's disease, memory problems often appear later in the course of Lewy body dementia.
In addition, it is characterized by rapid daily fluctuations in functioning and a high prevalence of visual hallucinations.
Why do older adults experience visual hallucinations?
Intense and recurrent visual hallucinations are a characteristic and early symptom of Lewy body dementia, affecting the majority of patients.
If you notice this in a loved one, along with signs of anxiety or confusion, see a doctor right away.
Why does the condition of a person with dementia change from one day to the next?
Unpredictable fluctuations in concentration and attention are typical of Lewy body disease.
A loved one may seem very lucid one day and very confused the next. These fluctuations are a direct part of the symptoms of the disease.
What are the physical symptoms of Parkinson's syndrome?
Lewy body dementia causes motor symptoms similar to those of Parkinson's disease: tremors (at rest or during movement), muscle stiffness, general slowness of movement, a stooped posture, and an increased risk of falls.
What are the options for home care for people with cognitive impairments?
There are two main options available to you, depending on the progression of the disease:
-
Tailored home care services designed to help older adults remain in their own homes as safely as possible for as long as possible.
-
Residences specializing in neurocognitive disorders, where a loss of independence requires round-the-clock care and supervision.



